Tessa Evans, born on Valentine’s Day in 2013, has inspired the medical world and her family through her journey with Bosma arhinia microphthalmia syndrome. This incredibly rare genetic condition affects facial development, including the nose and eyes, and can involve abnormal brain structure and delayed puberty. With only 100 recorded cases worldwide, Tessa’s story stands out for her groundbreaking treatments at such a young age.

Tessa’s parents, Grainne and Nathan Evans from Northern Ireland, were heartbroken but determined when she was born with no nose. “Shock was the absolute biggest emotion at the time – then heartbreak,” Grainne shared. Despite the challenges, Tessa thrived, undergoing her first surgery at just two weeks old to aid breathing and eating. By age two, she became the first person to receive a nasal implant using 3D printing, a procedure typically reserved for teenagers. Her parents explained, “We ultimately decided to go ahead…to normalize her profile without ever cutting her face.”

While Tessa’s treatments have improved her appearance, living without a sense of smell poses safety risks. “She can’t smell if something is dangerous, like if something was burning,” Grainne said. Still, her courage has paved the way for others, inspiring another young girl to receive similar treatment. Tessa’s story, shared on her Facebook page Tessa; Born Extraordinary, reminds us that anything is possible with innovation and support.